Researchers Share of Genomic Results With Participant's Relatives

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Researchers Share of Genomic Results With Participant’s Relatives

Topic 2: Patient with severe cognitive impairment (SCI) should not be denied organ transplants.

This topic seeks the support that this type of patient with severe cognitive impairment should not be discriminated in receiving organ transplant. Is important determine the urgency of transplant for example prioritizing the sickest patient.

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Topic 3: Should Researchers Share Genomic Results With Participant’s Relatives?

In many types of human research, individual findings might not matter much to anyone besides the participants themselves. Genomic research is a bit different; first- degree biological relatives share 50% of the participant’s genetic material . If researchers discover that a participant carries a gene linked to a dangerous but possibly preventable disease, they know that the participant’s relatives may also carry the gene. Warning these relatives could save lives – yet this rarely happens. Why?

Support- participants should control access to their individual results.

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